Friedreich’s ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's ataxia.
loss of coordination (ataxia) in the arms and legs fatigue - energy deprivation and muscle loss vision impairment, hearing loss, and slurred speech aggressive scoliosis (curvature of the spine) diabetes mellitus (insulin - dependent, in most cases) a serious heart condition (enlarged heart - hypertrophic cardiomyopathy)
At the age of 19, i was told id be dead at 29.
Im now 42. i refuse to die. "MIND OVER MATTER", is what i say to myself.
Ataxia will take my life but it will never take my will to live.
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